Day 142 Doctor

Bill, Lydia and I went together to visit Dr. Civitello.  Here is Bills update about our visit.  

Lydia Update

Since you’ve expressed some concern Lauril and I wanted to share the results of our visit with National Children’s Hospital regarding Lydia’s seizures.

Lauril had done an excellent job documenting all sorts of details about the seizures and their progression.  Of special benefit were the videos she took, that helped the doctor see the extent and progression of the seizures, and the journal she brought from her visit to the school documenting 23 seizures in a 10 minute period.

There are more tests to conduct including an EEG or two and an MRI to understand what part of her brain is causing the seizures and what the actual cause is.  The good news is that she was able to rule out some really important concerns.  No tumor, no infection and no brain injury, so no surgery.  More tests later on could reveal a need for procedures in the future but all signs point to some form of epilepsy that drugs can help control.  This should help her get back on track with her learning and protect her confidence.

After the EEG next Thursday, Dr. Civitello will probably prescribe a drug to control the seizures.  She said that it is important to know what type of seizures she is having because certain drugs are for certain types of seizures.  

Doctor Civitello was great to listen to our concerns watch the videos I had taken and get a family medical history.  She spent about two hours with us.  We are grateful to have found a great doctor to help us help Lydia.  We know that having the right doctor will help Lydia as she grows because it will be a on going relationship.