Day 173-174 EEG

Children's National Hospital

Bill, Lydia, and I had to be at Children's National Hospital by 1:45 pm.  We started out at 10:00 am to make  it to our appointment.  Now we had plenty of time to get there.  We stopped and ate at Chipotle near the National Zoo.  We took our time knowing we weren't too far away.  However it is amazing that even following the GPS you can make a couple of wrong turns and you walk in the door of the hospital at 1:47.  Bill dropped Lydia and I off at the door and he finds parking.  After checking in to the Hospital we arrive on the 5th floor room 542 for Lydia's overnight EEG.  The EEG tech arrives and places wire leads all over her head, wraps her head in gauze and puts a crazy cute hat over her wires. Now she looks so much like a court jester.

We had so much fun playing games, coloring, and snacking
It was a slumber party with a cool hat and a tether cord.

The hats are made by volunteers and given to each child. It covers
 up the gauze that makes them look like they are hurt.

Bill returned home and Lydia and I spent the night.  I was there to watch and record any seizures if she were to have any.  The wires records brain waves.  I did not see any seizures but I did notice times when the recorder did, (I assume.) I will find out more next week when I hear from the doctor.  Lydia enjoyed Mac and Cheese, chicken nuggets apple juice and cookies for dinner.  She had pancakes, sausage, cereal and chocolate milk for breakfast.  Getting to the bathroom with a cord for a tether is a challenge but after about the 3rd time we worked out a system that worked pretty well.  Lydia fell asleep about 10:00 after a few tears about not having family prayer with everyone and missing her sisters and brothers.  I watched her as she slept for a few hours and then finally fell asleep after finishing the book Heaven is Here, and working on my Sunday School lesson.

Saturday morning consisted of  having the leads taken off her head, eating and showering fast so we could meet Bill at the loading area.  Lydia did great!   We left the hospital about 9:30am.  Bill had found a faster way to the hospital.  It only took us an hour to get back to the church where Bill had left Austin in charge of filling the baptismal font for a youth baptism.  Emily had found her own way to the stake center for a stake dance practice and Willy had chosen to sleep in and miss the practice.  We all spent the day tired.